Thursday, November 1, 2007
Since last Thursday night, after Eliza aspirated some vomit, she has refused to eat anything. I should clarify: Eliza has refused to eat her usual whopping 2 to 4 ounces of yogurt a day. Normally on days when she won't eat she would take in 20 or even occasionally 24 ounces of formula. Now she is taking in only a total of 12 ounces of formula on a good day, closer to 10 ounces on average. Four of these ounces have to be given to her an ounce at a time while she is sleeping at night. We've been to the ER for dehydration, which was an abject misery. Eliza's feeding therapist has no idea what to try next. God only knows what the nutritionist is going to do each week since Eliza will not eat anything. The GI wants her to be over her lung problems before he starts investigating the cause of this latest refusal to eat.
In addition to taking in only the bear minimum to stave off total dehydration and barely maintain homeostasis, she now gags at the very sight of a bottle. She can no longer tolerate her nebulizer treatments since the mist blowing on her face makes her hysterical. She has to have her mouth pried open in order to get any meds in. Her vomiting has lessened, from every other hour at night to about 4 times a night. At this point getting enough calories to "grow" isn't even an issue, the focus is now on getting enough fluids not to dehydrate. I am really unsure how long she can go on like this.